References


Binder, K. and Hoche, A. (1975). The Release of the Destruction of Life Devoid of Value. (R. Sassone, Ed). Santa Ana, CA: Life Quality Paperback. (Originally published in German by Felix Meiner, Leipzig 319, 1920).


British Columbia Royal Commission on Health Care and Costs. (1991). Closer to Home: A Summary of the Report.


Canadian Council on Health Facilities Accreditation. (1990). "Palliative Care Program (PCP)" section of the council's standards.  Ottawa: CCHFA. (1730 St. Laurent Blvd., Ste 430, K1G 5L1).


Cancer 2000. (1991). Inequalities in Cancer Control in Canada. Submitted by the Members of the Panel on Cancer and the Disadvantaged.


Cancer 2000. (1991). Report to Cancer 2000 Task Force by Expert Panel on Palliative Care.


Carroll, David. (1985). Living with Dying: A Loving Guide for Family and Close Friends. New York: McGraw-Hill.


Donabedian, Avedis MD, MPH. (September 23/30, 1988) "The quality of care: How can it be assessed?" Journal of the American Medical Association 1988; 260: 1743-1748.


Epp, J. (1986). Achieving Health for All: A Framework for Health Promotion. Ottawa: Health and Welfare.


Graham, L. (1977). "Politics and Genetics: The Link Between Science and Values." Hastings Center Report. 7:30-39.


Health and Welfare Canada. (1989). The Report of the Expert Working Group on Integrated Palliative Care for Persons with AIDS.


Health Services and Promotion Branch of Health and Welfare Canada. (1989). "Palliative-Care Services: Guidelines for Establishing Standards" prepared for the Subcommittee on Institutional Program Guidelines by their working group members.


[Henderson, Helen. (January 21, 1995). "Whose Pain was Robert Latimer Really Thinking About?" in The Toronto Star, page L4.]


Humphry, Derek.  (1991).  Final Exit.  Eugene, Oregon: The Hemlock Society.


Joint Commission on Accreditation of Healthcare Organizations. (1986). Hospice Standards Manual. Oakbrook Terrace, Illinois: Joint Commission (One Renaissance Boulevard, 60181).


Joint Commission on Accreditation of Healthcare Organizations. (1990). Quality assurance in home care and hospice organizations. Oakbrook Terrace, Illinois: Joint Commission (One Renaissance Boulevard, 60181).


Kavanaugh, Robert. (1972). Facing Death. Los Angeles: Nash.


Latimer, Elizabeth.  (1991). "Ethical Decision-Making in the Care of the Dying and Its Application to Clinical Practice." Journal of Pain and Symptom Management. Vol 6, No. 5, July.


Latimer, Elizabeth.  (1991). "Euthanasia: A Physician's Reflections." Journal of Pain and Symptom Management. Vol 6, No. 8, November.


Law Reform Commission of Canada. (1983). Report on Euthanasia, Aiding Suicide and Cessation of Treatment. Ottawa: Ministry of Supply and Services, Canada.


[Ley, Dorothy C.H. with van Bommel, Harry. (1994). The Heart of Hospice. Toronto: NC Press.]


Linton, Adam. (January 24, 1992). "There's a better way to keep the system from taking a fall." Toronto: Globe and Mail, p. D4.


Maguire, Daniel C. (1984). Death by Choice, 2nd Edition. New York: Image Books/Doubleday and Co.


[Marker, Rita. (1993). Deadly Compassion: The Death of Ann Humphry and the Truth about Euthanasia. New York: William Morrow and Company.]


Miccio, Betty Lou. (Summer 1984).  "A practical approach to quality assurance for hospice: The program should be carefully planned and as simple as possible." The American Journal of Hospice Care 1984; 14-17.


National Council of Welfare. (1990). Health, Health Care and Medicare. Ottawa: Ministry of Supply and Services.


Nova Scotia's Department of Health. (1990). Heath Strategy for the Nineties: Managing Better Health.


O'Connor, John A.; Burge, Fred I.; King, Bernice; and Epstein, Joan. (1986). "Does care exclude cure in palliative care?" Journal of Palliative Care 2:1/1986, 9-15.


Ontario Ministry of Community and Social Services. (1991). Redirection of Long-Term Care and Support Services in Ontario


Ontario Premier's Council on Health Strategy. (1991). Nurturing Health: A Framework on the Determinants of Health.


Ontario Premier's Council on Health Strategy. (1991). Achieving the Vision: Health Human Resources.


Ontario Premier's Council on Health Strategy. (1991). Local Decision Making for Health and Social Services.


Ontario Premier's Council on Health Strategy. (1991). Towards Health Outcomes: Goals 2 and 4 -- Objectives and Targets.


[Pollard, John. (1994). "Dreading the Hoping All: An Examination of Euthanasia, Past, Present and Future". North York: York University, Report of the Institute for Social Research.]


The Position of the Royal Dutch Medical Association on Euthanasia. (1984). English Translation by e.t.c. (English Text Company). Nassau Dillenburgstraat 16, 2596 AD, Den Haag.


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[Seguin, Marilynne.  (1994).  A Gentle Death.  Toronto:  Key Porter Books.]


[Shavelson, Lonny.  (1995).  A Chosen Death.  New York:  Simon and Schuster.]


[Singer, Peter.  (1995).  Redefining Life and Death.  New York:  St. Martin's Press.]


Smook, A.O.A. and de Vos-Schippers, B. (eds.). (1990). Right to Self-Determination: Proceedings of the 8th World Conference of Right to Die Societies. Amsterdam: VU University Press.


Sutherland, Ralph W. and Fulton, M. Jane. (1988). Health Care in Canada: A Description and Analysis of Canadian Health Services. Ottawa: The Health Group.


Townsend, P. and Davidson, N. (eds). (1988). Inequalities in Health: The Black Report. London: Penguin Books.


van Bommel, Harry.  (1986, 1992).  Choices for People Who Have a Terminal Illness, Their Families and Their Caregivers.  Toronto: NC Press.


van Bommel, Harry. "Palliative Care Standards -- Who Decides?" Pain Management Newsletter edited by Barry R. Ashpole. Markham, Ontario: Knoll Pharmaceuticals Canada, 1991;4(3):3-5.


van der Maas, P., Van Delden, J., Pijnenborg, L. and Looman, C. (September 14, 1991). Euthanasia and other Medical Decisions Concerning the End of Life.  England: The Lancet Journal, Vol. 338, pp. 669-674.


Wennberg, Robert N. (1989). Terminal Choices: Euthanasia, Suicide and the Right to Die. Exeter, UK: Paternoster Press.


Whitehead, M. (1988). The Health Divide. London: Penguin Books.


Wolfensberger, Wolf. (1982). The Extermination of Handicapped People in World War II Germany. Mental Retardation. 19(1), 1-7.


Wolfensberger, Wolf. (1984). Reflections on Gibson's Article. Mental Retardation. 22(8), 157-58.


Wolfensberger, Wolf. (1987). The New Genocide of Handicapped and Afflicted People. Syracuse, NY: Author.


Wolfensberger, Wolf and Thomas, Susan. (1983). PASSING -- Program analysis of service systems' implementation of normalization goals: A method of evaluating the quality of human services according to the principle of normalization (2nd Edition).  North York: Canadian National Institute on Mental Retardation.


Yukon Legislative Assembly, Bill No. 4, Health Act assented to December 18, 1990, 2nd Session of the 27th Legislative Assembly.




[The following organizations publish newsletters that promote palliative care and are opposed to euthanasia.  They include current trends, legal decisions, summaries of articles from other publications and/or editorials:


Canadian Palliative Care Association, 5 Blackburn Avenue, Ottawa, Ontario, K1N 8A2. (800) 668-2785.

Compassionate Healthcare Network, P.O. Box 62548-12874 96th Ave., Surrey, BC, V3V 6V6.  (604) 582-8687.


International Anti-Euthanasia Task Force, P.O. Box 760, Steubenville, OH, 43952 USA. (614) 282-3810.]



INDEX


Index of Names [Note, the page references are from the original text and do not represent correct page numbers for the electronic version of the book. My apologies.]


Alberta, 35, 36

Heather M. Balfour, Executive Director, Community Hospice Association of Ontario; 50, 59

Anne Bell, Executive Director, Island Hospice Association (P.E.I.); 84

Laurie Bennett, Executive Director, Hospice of Peel, Inc.; 57

British Columbia, 30, 35, 44, 81

June Callwood, Author and Broadcaster; 34

Canadian Council of Health Facilities Accreditation, 43, 45

Cancer 2000, 31, 36

Cheryl Chapman, Community Outreach Co-ordinator; 51, 57, 62, 80

Shirley Cooper, Bereavement Co-ordinator; 52, 55, 81

Carol Derbyshire, Executive Director, Hospice of Windsor;  55, 84

Louis Dionne, M.D., Director General of Maison Michel Sarrazin (Sillery, Quebec); 59, 85

The Reverend Sally Eaton, Staff Chaplain, The Wellesley Hospital, Toronto; 53, 56, 61, 63

Jane Fulton, Professor of Strategic Management and Health Policy, University of Ottawa; 20, 33

Larry Grossman, M.D., Physician Manager, Palliative Care Program, Scarborough Grace Hospital;  51, 52, 53, 56, 57, 63, 81

Joan Henderson, President, Hospice King;  85

Elizabeth Latimer, M.D., Director of Palliative Care, Hamilton Civic Hospital;  53, 59, 84, 91, 98

Dorothy C.H. Ley, MD, FRCP(C), FACP, Founder and Past President of the Canadian Palliative Care Foundation; Dedication Page, 21, 50, 51, 53, 57, 58, 59, 61, 63, 85

Evelyn MacKay, former nurse, therapeutic touch practitioner, palliative care volunteer and teacher; 56, 82

Jackie MacKenzie, Executive Director, Hospice of London;  52, 56, 60

Tom Malcomson, Professor, George Brown College and Member of the Southern Ontario Training Group; 52, 55, 85

Manitoba, 35

Sandra McKenzie, Director, Community Health, Government of The Northwest Territories; 30

Balfour Mount, MD, FRCS(S), Professor of Palliative Medicine and Director of Palliative Care Medicine, McGill University;  49, 52, 53, 57, 58, 59, 85

New Brunswick, 29, 35

Newfoundland, 35, 52

Barbara Noonan, Palliative Care Nurse Consultant; 50

Northwest Territories, 35

Saskatchewan, 35

Nova Scotia, 30, 35

Wilma O'Connell, Palliative Care Program Director;  51, 84

Ontario, 29, 31, 35

Joanne C. Oosterhuis-Giliam, Clinical Director, Hopewell Children's Homes; 62

Gertrude Paul, Palliative Care Consult Nurse;  50, 81

Prince Edward Island, 35

Quebec, 35

Catherine A. Rakchaev, R.N., CEO, The Dorothy Ley Hospice;  50, 57

David J. Roy, BA(Math), STB, STL, PhL, Dr Theol, Director of the Center for Bioethics, Clinical Research Institute of Montreal; 87, 100

Margaret R. Scott, M.D., Associate Professor of Medicine, Memorial University of Newfoundland and Provincial Consultant, Palliative Care, Newfoundland Cancer Treatment and Research Foundation; 50, 52, 58, 85

Marilynne Seguin, R.N., Executive Director, Dying With Dignity;  51, 60, 83, 92

Ralph Sutherland, M.D.; 20, 33

Trinity Hospice Toronto members: Elaine Hall, Resource Person; Beth  Pelton, Co-ordinator; Pam Leeb, Board Member; 23, 50, 56

Steven Waring, Palliative Care Volunteer, Hospice Dufferin (Orangeville, Ontario); 53, 56, 82

Virginia Clark Weir, Manager, Continuing and Palliative Care, Scarborough Grace Hospital;  59

Wellington Hospice Members: Walter Boos, President; Jackson E. Mathieu, Medical Director; Barbara Plunkett, Coordinator; 57

Wolf Wolfensberger, Professor, Syracuse University Division of Special Education and Rehabilitation, Director, Training Institute for Human Service Planning and developer of the PASSING Evaluation Tool for Human Services; 38, 63, 71, 101

Yukon, 35.


About the Author


Harry van Bommel has been an adult educator since 1981 and is President of PSD Consultants. He is the author of seven books including ones on management and staff development and helping adults enhance learning skills. Mr. van Bommel has a Masters Degree in Adult Education and a Combined Honours Bachelor Degree in History and Political Science. His list of clients includes people and organizations in education, health care, social services, government, not-for-profit organizations and the general public.


Mr. van Bommel helped both of his parents and his grandfather live at home until their deaths. This experience led to his researching and writing Choices for People Who Have a Terminal Illness, Their Families and Their Caregivers; a practical guide on pain and symptom control, palliative/hospice care, legal and moral rights and responsibilities, working with physicians, euthanasia, emotional aspects of dying and death, preparing legal and financial affairs, and preparing funeral arrangements. Mr. van Bommel, as a community volunteer and education specialist, advises several palliative care organizations. He is also a community member of various local, provincial and federal palliative care associations.


Questionnaire


Dying for Care: Hospice Care or Euthanasia is one forum for people to learn about the thoughts, beliefs and hopes of other Canadians.


I hope that some of you, including those of you who have a terminal or life-threatening illness and your families, will write down some of your thoughts on the issues presented in this book and send them to me. I do not know if your comments will ever be published but I hope to have a follow-up book one day to broaden the hospice care and euthanasia debate even further. You can certainly help.


Please answer some, or all, of the following questions and sign and date the bottom of each page. Your signature will tell me that you allow me to quote your ideas in verbal presentations and/or in some written form. Of course I will respect any wishes you may have to keep your comments anonymous.


1. If you had a terminal illness what would make dying easier and/or more meaningful for you?


2. What do you think have been the greatest successes of palliative care in Canada?


3. What are your personal views on legalizing euthanasia in Canada?


4. If you work in a palliative care program would you please send in a story or two of specific cases that highlight the strengths and needs of your program? (People often learn best through actual stories than through program descriptions.)


5. Do you have any other comments?


If you think it would help others understand your comments, please write a brief personal history.


Please sign and date your comments and send them to:


Harry van Bommel

Legacies Inc.

11 Miniot Circle

Scarborough, Ontario M1K 2K1

CANADA

harry@legacies.ca

www.legacies.ca


Thank you for helping Canadians understand each other better.

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